The Effectiveness of a Caregiver Participation Program in Managing Pediatric Thalassemia Patients During Blood Transfusion in a One-Day Blood Transfusion Clinic at Uttaradit Hospital
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Abstract
This quasi-experimental research aimed to 1) compare the knowledge of caregivers of pediatric thalassemia patients during blood transfusions with active participation before and after participating in the Effectiveness of a Caregiver Participation Program in Managing Pediatric Thalassemia Patients During Blood Transfusion. 2) To compare the participatory caregiving behaviors of caregivers of pediatric thalassemia patients during blood transfusions before and after participating in the program. 3) To study the satisfaction of personnel working in day-care blood transfusion clinics with the participatory care program for pediatric thalassemia patients during blood transfusion. The sample group consisted of two groups: Group 1 comprised 30 caregivers of pediatric thalassemia patients receiving day-care blood transfusions at the Pediatric Ward 3, Uttaradit Hospital. Group 2 consists of personnel involved in providing blood transfusions to patients at the day-care blood transfusion clinic, including doctors, nurses, and patient assistants, totaling 18 people. The research instruments included: 1) a program for participatory care of pediatric thalassemia patients during blood transfusions, with a content validity (CVI) of 1.0. 1) Questionnaire on knowledge regarding the care of pediatric thalassemia patients during blood transfusions. 2) Questionnaire on caregiving behaviors for pediatric thalassemia patients during blood transfusions And 4) A questionnaire on the satisfaction of personnel with the participatory care program for pediatric thalassemia patients during blood transfusions. Data were analyzed using descriptive statistics and the paired t-test.
The results found from experiment is that: 1) The groups of caregivers’ knowledge significantly increased after participating in the program, at .001. 2) Caregivers’ caregiving behavior also significantly improved after participation, at .001. 3) Healthcare personnel reported a high level of satisfaction with the program (𝒙̅=4.55, SD = .30).
This research demonstrates that this program has the potential to be a best practice in improving the quality of care for children with thalassemia in the long term. And consideration should be given to adapting or expanding its use on a wider scale so that caregivers and patients can benefit the most.
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References
Arnstein, S.(1969). A Ladder of Citizen Participation. Journal of the American Planning Association, 35(4), 216-224.
Bloom, Benjamin S. J. (ed). (1975). Taxonomy of education objective, Hand Book1: Cognitive Domain. New York: David Mckay.
Best, J. W. (1977). Research in education (3 rd ed.) Englewood Cliffs, NJ: Prentice Hall.
Cheamram, W. (2024). Effects of participation program to learn about fever-reducing wipes on the ability of caregivers of children with high fevers in the pediatric ward Lamphun Hospital. Journal of Health and Environmental Education, 9(1), 813–822.
Cohen, J. M. & Uphoff, N. T. (1986). World development. McGaw-Hill.
Cohen, J. M. & Uphoff, N. T. (1986). Rural development participation: Concept and measure for project design implementation and evaluation: Rural Development Committee Center for international Studies. New York: Cornell University Press.
Jantanam, W., Ritmontree, S., Jutangura, S. & Jantanam, W. (2024). Effects of a structured education program on the knowledge and behavior of caregivers of children with Thalassemia at Roi Et Hospital. Journal of Nursing Science Christian University of Thailand, 11(1), 52–66. (in Thai).
Jaradrattanapaiboon, Y., Wongchum, R. & Kaewmamueng, K., (2022). The correlation between eating behavior and nutritional status of Thalassemic children with transfusion- dependence at Provincial Hospitals in the Northern Part of Thailand. Thai Red Cross Nursing Journal, 15(2),190–204. (in Thai).
Jungsomjatepaisal, P. (2020). Thailand’s primary health care in global health context. Journal of Health Science, 29(1), 152–162. (in Thai).
Kasuri, W. (2024). Effects of using the nursing practice guideline for children with thalassemia in receiving a blood transfusion in pediatrics ward at Wanonniwat Hospital, Sakon Nakhon Province. Journal of Environmental and Community Health, 9(2), 848–859. (in Thai).
Kuewong, G., & Wongwanich, S. (2021). Needs identification and analysis in patient-and family-centered care of pediatric nurses and families. Thai Red Cross Nursing Journal, 14(1), 95–108. (in Thai).
Limwattana, S. (2023). The effects of providing information via media application by family participation on self-care behaviors among school aged children with Asthma. Chulalongkorn University. (in Thai).
https://digital.car.chula.ac.th/chulaetd
Mapiloon, P., Rutchanagul, P. & Muensa, W. (2016). Impact of a self-care development programme for school-age Thalassaemic children and their caregivers’ ability on the children’s self-care behavior, Thai Journal of Nursing Council 2016, 31(2) 52-68. (in Thai).
Phanphongsin, R. (2022). Operating manual: Blood transfusion process for nurses at Burapha
University Hospital. Retrieved (2024, January 29). from
https://buuir.buu.ac.th/bitstream/1234567890/5063/1/MED_Rattanaporn.pdf
Sananreangsak, S., Teerarungsikul, N., Sarapat, P. & Pinyo, M. (2020). The model of Self- management for Children with Thalassemia. The Journal of Faculty of Nursing Burapha University, 28(2), 29-39.
Sinpupanuruk, S., (2023). Effect of the self-care ability development program on self-care behavior of school-age children with thalassemia in pediatric ward at Phetchabun hotpital. Phetchabun Medical Journal, 3(2), 149-163. (in Thai).
Srisatitanarakul, B. (2010). Research methodology in nursing. Bangkok: U& I Intermedia.
Srisatitanarakul, B. (2012). Development and validation of research instruments : psychometric properties. Bangkok: Chulalongkorn University Press. (in Thai).
Tantalanukul, S., Khiaolueang, D., Kooariyakul, A., Srijaiwong, S., Fongkerd, S., Isarangura Na Ayudhaya, P. & Pusopa, C. (2024). Development of instructional model with simulated situation to enhance performance in emergency nursing of nursing students. Journal of Education and Innovation, 27(1), 294-307. (in Thai).
Thongbupa, S. (2019). The effects of a family participation program in cognitive rehabilitation on the functional outcomes of acute stroke patients. (Master’ thesis). Thammasat University. (in Thai).
Tocharat, K. (2020). Blood transfusion in patients with thalassemic anemia. Royal Thai ArmyMedical Journal, 63(1), 39-42. (in Thai).
UNESCO. (1995). Participatory learning and action: A trainer’s guide. Paris: UNESCO.
Wagner, E. H., Austin, B. T.,Davis, C., Hindmarsh, M., Schaefer, J., & Bonomi, A. (2001). Improving chronic illness care: translating evidence into action. Health Aff, 20, 64-78.
