Correlation Between Burden and Preparedness for Caregiving Among Caregivers of Patients Undergoing Hemodialysis in the First Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Province, the People’s Republic of China
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บทคัดย่อ
Background: Patients undergoing hemodialysis experience functional dependency, physical symptoms, and psychological problems. The impacts of hemodialysis create a burden on caregivers who take care of these patients. Preparedness for caregiving is important to reduce burden. Aim: To investigate burden and preparedness for caregiving as well as the relationship between burden and preparedness for caregiving among caregivers of patients undergoing hemodialysis. Methods: Theis descriptive correlational study was performed on 172 caregivers. Questionnaires included demographic surveys of patients undergoing hemodialysis and caregivers, the Zarit Burden Interview, and the Preparedness for Caregiving Scale. The Cronbach’s alpha of the Zarit Burden Interview and the Preparedness for Caregiving Scale were .933 and .906 respectively. Data were analyzed using descriptive statistics and Spearman’s rank correlation coefficient. Results: The average age of patients undergoing hemodialysis was 64.63 years old (SD=11.47). The average monthly income was 1,725.58 yuan (247.75 dollar) , which was below their monthly out-of-pocket medical expenses of 2,590.41 yuan . (371.97 dollar) The average age of caregivers was 57.23 years old (SD = 12.94). Most of them had a primary or junior middle school education. The mean total burden score was 38.75 (SD = 6.75). Caregivers felt a moderate level of a burden overall. The overall mean preparedness for caregiving was 2.25 (SD = .59). There was a correlation between burden and preparedness for caregiving (rs = - .283, p = .000). Conclusion and Implications: The more preparedness for caregiving caregivers perceive, the less burden they feel. This study provides baseline information for nurses to promote caregivers’ preparedness for caregiving to help reduce the burden.
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บทความหรือข้อคิดเห็นใดใดที่ปรากฏในวารสารวิจัยการพยาบาลและวิทยาศาสตร์สุขภาพ เป็นวรรณกรรมของผู้เขียน ซึ่งบรรณาธิการหรือสมาคมศิษย์เก่า ไม่จำเป็นต้องเห็นด้วย และบทความที่ได้รับการตีพิมพ์เผยแพร่ถือเป็นลิขสิทธิ์ของวารสารวิจัยการพยาบาลและวิทยาศาสตร์สุขภาพ
References
Alnazly, E. K. (2016). Burden and coping strategies among Jordanian caregivers of patients undergoing hemodialysis. Hemodialysis International, 20(1), 84-93. doi:10.1111/hdi.12318
Alnazly, E., & Samara, N. (2014). The burdens on caregivers of patients above 65 years old receiving hemodialysis: A qualitative study. Health Care Current Reviews, 2(1), 1000118. doi:10.4172/2375-4273.1000118
Archbold, P. G., Stewart, B. J., Greenlick, M. R., & Harvath, T. (1990). Mutuality and preparedness as predictors of caregiver role strain. Research in Nursing and Health, 13(6), 375-384.
Bawazier, L., Stanley, I., Sianipar, W., & Suhardjono, S. (2018). Anxiety and depression among caregivers of hemodialysis patients at the Indonesian national referral hospital. Medical Journal of Indonesia, 27, 271. doi:10.13181/mji.v27i4.2999
Cagan, O., Unsal, A., Celik, N., Yilmaz, A. T., Culha, I., & Eren, H. K. (2018). Care burden of caregivers of hemodialysis patients and related factors. International Journal of Caring Sciences, 11, 279-284.
Chou, K. R. (2000). Caregiver burden: A concept analysis. Journal of Pediatric Nursing, 15(6), 398-407. doi:10.1053/jpdn.2000.16709
Cook, W. L., & Jassal, S. V. (2008). Functional dependencies among the elderly on hemodialysis. Kidney International, 73(11), 1289-1295. doi:10.1038/ki.2008.62
Ebadi, A., Sajadi, S. A., Moradian, S. T., & Akbari, R. (2018). Suspended life pattern: A qualitative study on personal life among family caregivers of hemodialysis patients in Iran. International Quarterly of Community Health Education, 38(4), 225-232. doi:10.1177/0272684x18773763
Fujinami, R., Sun, V., Zachariah, F., Uman, G., Grant, M., & Ferrell, B. (2015). Family caregivers' distress levels related to quality of life, burden, and preparedness. Psycho-Oncology, 24(1), 54-62. doi:10.1002/pon.3562
Given, B., Sherwood, P. R., & Given, C. W. (2008). What knowledge and skills do caregivers need. The American Journal of Nursing, 108(9), 28-34. doi:10.1097/01.NAJ.0000336408.52872.d2
Hagedoorn, E. I., Keers, J. C., Jaarsma, T., van der Schans, C. P., Luttik, M. L. A., & Paans, W. (2019). The association of collaboration between family caregivers and nurses in the hospital and their preparedness for caregiving at home. Geriatric Nursing (New York, N.Y.), 41(4), 373-380. doi:10.1016/j.gerinurse.2019.02.004
Henriksson, A., & Arestedt, K. (2013). Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: a correlational, cross-sectional study. Palliative Medicine, 27(7), 639-646. doi:10.1177/0269216313486954
Holm, M. (2016). Promoting preparedness for family caregiving – A randomised controlled intervention in palliative care. Karolinska Institutet.
Hyodo, T., Hirawa, N., Hayashi, M., Than, K. M. M., Tuyen, D. G., Pattanasittangkur, K., . . . Yamashita, A. C. (2017). Present status of renal replacement therapy at 2015 in Asian countries (Myanmar, Vietnam, Thailand, China, and Japan). Renal Replacement Therapy, 3(1), 11. doi:10.1186/s41100-016-0082-7
Maddalena, V., O'Shea, F., & Barrett, B. (2018). an exploration of palliative care needs of people with end-stage renal disease on dialysis: Family caregiver's perspectives. Journal of Palliative Care, 33(1), 19-25. doi:10.1177/0825859717747340
Mollaoglu, M., Kayatas, M., & Yurugen, B. (2013). Effects on caregiver burden of education related to home care in patients undergoing hemodialysis. Hemodialysis International, 17(3), 413-420. doi:10.1111/hdi.12018
Murtagh, F. E., Addington-Hall, J., & Higginson, I. J. (2007). The prevalence of symptoms in end-stage renal disease: A systematic review. Advances in Chronic Kidney Disease, 14(1), 82-99. doi:10.1053/j.ackd.2006.10.001
Niu, H. Y., & Liu, J. F. (2017). The psychological trajectory from diagnosis to approaching end of life in patients undergoing hemodialysis in China: A qualitative study. International Journal of Nursing Sciences, 4(1), 29-33. doi:10.1016/j.ijnss.2016.10.006
Pasacreta, J. V., Barg, F., Nuamah, I., & McCorkle, R. (2000). Participant characteristics before and 4 months after attendance at a family caregiver cancer education program. Cancer Nursing, 23(4), 295-303. doi:10.1097/00002820-200008000-00007
Peng, Y., Yang, X., Chen, W., & Yu, X.-Q. (2019). Association between timing of peritoneal dialysis initiation and mortality in end-stage renal disease. Chronic Diseases and Translational Medicine, 5(1), 37-43. doi:10.1016/j.cdtm.2018.10.001
Petruzzo, A., Paturzo, M., Buck, H. G., Barbaranelli, C., D'Agostino, F., Ausili, D., . . . Vellone, E. (2017). Psychometric evaluation of the Caregiver Preparedness Scale in caregivers of adults with heart failure. Research in Nursing and Health, 40(5), 470-478. doi:10.1002/nur.21811
Scherbring, M. (2002). Effect of caregiver perception of preparedness on burden in an oncology population. Oncology Nursing Forum, 29(6), E70-E76. doi:10.1188/02.Onf.E70-e76
Senmar, M., Rafiei, H., Yousefi, F., Razaghpoor, A., & Bokharaei, M. (2019). Caregiver burden among family caregivers of older patients receiving hemodialysis and its relevant factors. Journal of Nephropharmacology, 8(1), e12. doi:10.15171/npj.2019.12
Shakya, D., Tuladhar, J., & Poudel, S. (2017). Burden and depression among caregivers of hemodialysis patients. Palliative Medicine & Care: Open Access, 4(1), 1-6. doi:10.15226/2374-8362/4/1/00131
Slatyer, S., Aoun, S. M., Hill, K. D., Walsh, D., Whitty, D., & Toye, C. (2019). Caregivers’ experiences of a home support program after the hospital discharge of an older family member: A qualitative analysis. BMC Health Services Research, 19(1), 220. doi:10.1186/s12913-019-4042-0
Yamane, T. (1967). Statistics : An introductory analysis (2nd ed.). New York : Harper and Row.
Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. Gerontologist, 26(3), 260-266. doi:10.1093/geront/26.3.260
Zarit, S. H., & Zarit, J. M. (1990). The memory and behavior problems checklist and the burden interview. University Park, PA: Gerontology Center, The Pennsylvania State University.
Zhang, R., Cui, X., & Zhuang, H. (2016). The burden for caring patients on maintenance hemodialysis is influenced by social and demographic factors. General Medicine: Open Access, 4(6), 1000281. doi:10.4172/2327-5146.1000281
Zhou, L., Zeng, X.-X., & Fu, P. (2017). Community hemodialysis in China: Opportunities and challenges. Chinese Medical Journal, 130(18), 2143-2146. doi:10.4103/0366-6999.213961