The Development of Care Management Model for Pediatric AIDS patients in Bamrasnaradura Institute Diseases Institute Based on Knowledge Management

Abstract

           The purposes of this research and development were: 1) to develop a care management model for pediatric AIDS patients based on knowledge management and 2) to evaluate this model in the context of Bamrasnaradura Infectious Disease Institute (BIDI). Subjects in this research consisted of 51 persons and they were divided into 3 groups: 15 health care staff from multidisciplinary fields, 20 relatives or care givers, and 16 HIV children cases. Two research tools were used: 1) Talking Issues for knowledge sharing in each subject group and 2) the evaluation suitable form of the knowledge management model for caring for pediatric AIDS patients. Both were checked for content validity by five experts and their validity range from 0.80 to 1.00. Qualitative data was collected by dialogue and storytelling techniques, and they were analyzed by content analysis.

           The research results were as follows. 1) The self-care management model for pediatric AIDS patients was developed and comprised 9 components. First, all per-sons who were care givers both health care staff and relatives needed to Co-operate with each other. Second, treatment and care protocol must be at a standardized level by doctors and nurses. Third, patients must take their medication correctly and continuously. Fourth, suitable health teaching materials must be provided for both children and focus group discussion. Fifth, these patients needed to be well-prepared in terms of health promotion both in body and mind before their blood test results were disclosure and before entering teenager period. Sixth, social support and welfare including protection of patient rights must be provided. Seventh, networks must be developed for caring for HIV children and connecting them to organizations so continued treatment and care could be provided for HIV patients. Eighth, family should give love to and had a good relationship with the patient. Care givers should attend to and recognize these patients as human beings while caring for them. Evaluation and problem-solving must be done continuously. Ninth, the goal of model was the quality of life of pediatric AIDS patients. 2) The new model was suitable and can be used for management of pediatric AIDS patients in the context of BIDI. The reliability of the model was 0.93. In order to maximize the quality of life for pediatric AIDS patients, all concerned should participate in developing the management model by using and sharing their knowledge, skills, and experiences which comprise their tacit knowledge.