Caregiving Preparedness and Burden Among Caregivers of Persons Receiving Hemodialysis
Keywords:
Caregiving Preparedness, Burden Among Caregivers, Persons Receiving HemodialysisAbstract
Patients undergoing hemodialysis require close and continuous care, which causes caregivers to face challenges in physical, psychological, emotional, social, and economic aspects, leading to a significant caregiving burden. This descriptive research aimed to examine caregiving preparedness, caregiver burden, and their relationship among those caring for patients receiving hemodialysis. The sample consisted of 144 caregivers purposively selected from hospitals in Guangxi, China. Data were collected using a sociodemographic questionnaire, the Preparedness for Caregiving Scale (C-PCS), and the Zarit Burden Interview (C-ZBI). Both instruments demonstrated acceptable validity (C-PCS = 0.71; C-ZBI = 0.73) and high reliability, with Cronbach’s alpha coefficients of 0.92 for the C-PCS and 0.87 for the C-ZBI. Data were analyzed using descriptive statistics and Spearman’s correlation coefficient. The results revealed that caregivers experienced a relatively high level of burden ( = 50.25, SD = 17.65) and a low level of caregiving readiness (
= 14.21, SD = 5.24). Furthermore, a significant moderate negative correlation was found between caregiving preparedness and overall caregiver burden (r = -0.474, p < 0.01), including burden across multiple domains: relational, emotional, social and family, financial, and loss of control over life. The findings of this study may serve as fundamental information for developing interventions to enhance caregiving readiness and reduce caregiver burden.
Downloads
References
Murdeshwar HN & Anjum F. Hemodialysis. In: StatPearls. Florida: StatPearls Publishing; 2020.
Chinese National Center for Quality Control of Nephrology. Hemodialysis. Beijing: CNRDS;
(in Chinese)
Phuttha A, Singchungchai P & Chatdokmaiprai K. Cost analysis of nursing activities for stage 5 chronic kidney disease with hemodialysis patients in a tertiary hospital. The Journal of the Royal Thai Army Nurses. 2025;22(1):469–77. (in Thai)
Archbold PG. The clinical assessment of mutuality and preparedness in family caregiver to frail older people. In: Key aspects of elder care. New York: Springer Publishing; 1992.
Zarit SH, Todd PA & Zarit JM. Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist. 1986; 26(3):260–6.
Li T, Fan R & Lv G. Burden of family caregiver for hemodialysis patients and its influence factors. Chinese Journal of Blood Purification. 2017;16(3):179–82. (in Chinese)
Wang G, Yi X, Zhao X, & Yu L. Sense of coherence and its influencing factors among family caregivers of patients undergoing maintenance hemodialysis. Journal of Nursing Science. 2021;36(9):72–4. (in Chinese)
Wang H, Liu Y, Du M, Zhang P, & Yu X. Preparedness for emergency events among patients with chronic diseases in China: A cross-sectional study. Research Square. 2021. (in Chinese)
Qiu L. Burden and preparedness for caregiving among caregivers of patients undergoing hemodialysis in the First Affiliated Hospital of Guangzhou University of Chinese Medicine, Guangdong Province, the People’s Republic of China [master’s thesis]. Chiang Mai: Chiang Mai University; 2020.
Xia X, Wu X, Zhou X, Zang Z, Pu L, & Li Z. Comparison of psychological distress and demand induced by COVID-19 during the lockdown period in patients undergoing peritoneal dialysis and hemodialysis: A cross-sectional study in a tertiary hospital. Blood Purification. 2021;50(3–4):319–27. (in Chinese)
Yamane T. Statistics: An introductory analysis. 3rd ed. New York: Harper & Row; 1973.
Shyu YIL, Yang CT, Huang CC, Kuo HC, Chen ST, & Hsu WC. Influences of mutuality, preparedness, and balance on caregivers of patients with dementia. Journal of Nursing Research. 2010;18(3):155–63.
Liu Y, Wang M & Dong X. Reliability and validity of Chinese version of the Caregiver Preparedness Scale in caregivers of stroke survivors. Chinese Journal of Practical Nursing. 2016;32(12):1045–8. (in Chinese)
Yap P. Validity and reliability of the Zarit Burden Interview in assessing caregiving burden. Annals of the Academy of Medicine Singapore. 2010;39(9):758–63.
Lu L, Wang L, Yang X, & Feng Q. Zarit Caregiver Burden Interview: Development, reliability and validity of the Chinese version. Psychiatry and Clinical Neurosciences. 2009;63(6):730–4. (in Chinese)
Vellone E, Biagioli V, Durante A, Buck HG, Iovino P, & Tomietto M, et al. The influence of caregiver preparedness on caregiver contributions to self-care in heart failure and the mediating role of caregiver confidence. Journal of Cardiovascular Nursing. 2020; 35(3):243–52.
Sari IWW & Nirmalasari N. Preparedness among family caregivers of patients with noncommunicable diseases in Indonesia. Journal of Nursing. 2020;10(3):340–9.
Liu J, Liu Q, Huang Y, Wang W, He G, & Zeng Y. Effects of personal characteristics, disease uncertainty and knowledge on family caregivers’ preparedness of stroke survivors: A cross-sectional study. Nursing & Health Sciences. 2020;22(4):892–902. (in Chinese)
Otto AK, Ketcher D, Heyman RE, Vadaparampil ST, Ellington L, & Reblin M. Communication between advanced cancer patients and their family caregivers: Relationship with caregiver burden and preparedness for caregiving. Health Communication. 2021;36(6):714–21.
Petruzzo A, Biagioli V, Durante A, Gialloreti LE, D’Agostino, & F, Alvaro, R, et al. Influence of preparedness on anxiety, depression, and quality of life in caregivers of heart failure patients: Testing a model of path analysis. Patient Education and Counseling. 2019; 102(5):1021–8.
Liu J. Status quo of preparedness and empowerment educat ion for fam ily caregivers of stroke patients [doctoral dissertation]. Nantou: Nan Hua University;
(in Chinese)
Hagedoorn EI, Keers JC, Jaarsma T, van der Schans CP, Luttik MLA, & Paans W.The association of collaboration between family caregivers and nurses in the hospital and their preparedness for caregiving at home. Geriatric Nursing. 2020;41(4):373–80.
Fu C. Correlational study on the relationship between burden and quality of life among caregivers of maintenance hemodialysis patients [master’s thesis]. Kaifeng: Henan University; 2018. (in Chinese)
National Healthcare Security Administration. The national medical security development statistics of 2022. Beijing: NHSA; 2023. (in Chinese)
Department of Human Resources and Social Security of Guangxi Zhuang Autonomous Region. What is the proportion of medical insurance for hospitalization reimbursement? Nanning: DHRSS; 2016. (in Chinese)
Wu Z, Han X, Lan L, Xu H, Lyu C, & Sun L, et al. Characteristics and influencing factors of family functioning in patients undergoing hemodialysis: An analysis of middle-aged and young adults. Chinese Nursing Management. 2019;19(12):1816–21. (in Chinese)
Karabulutlu EY, Turan GB & Yanm S. Evaluation of care burden and preparedness of caregivers who provide care to palliative care patients. Palliative & Supportive Care. 2022;20(1):30–7.
Uhm KE, Jung H, Woo MW, Kwon HE, & Lee J. Influence of preparedness on caregiver burden, depression, and quality of life in caregivers of people with disabilities. Frontiers in Public Health. 2023;11(53):5588.
Lieshout K, Oates J, Baker A, Unsworth CA, Cameron ID, & Schmidt J, et al. Burden and preparedness amongst informal caregivers of adults with moderate to severe traumatic brain injury. International Journal of Environmental Research and Public Health. 2020;17(17):6386.
Sanghuachang N, Nakagasien P & Krainuwat K. Factors predicting delayed progression of CKD behavior among patients with chronic kidney disease stage G1–G2. The Journal of the Royal Thai Army Nurses. 2022;21(2):339–47. (in Thai)
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2025 Journal of The Royal Thai Army Nurses

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
บทความหรือข้อคิดเห็นใดใดที่ปรากฏในวารสารพยาบาลทหารบกเป็นวรรณกรรมของผู้เขียน ซึ่งบรรณาธิการหรือสมาคมพยาบาลทหารบก ไม่จำเป็นต้องเห็นด้วย
บทความที่ได้รับการตีพิมพ์เป็นลิขสิทธิ์ของวารสารพยาบาลทหารบก
The ideas and opinions expressed in the Journal of The Royal Thai Army Nurses are those of the authors and not necessarily those
of the editor or Royal Thai Army Nurses Association.

