Life Experiences of Cholangiocarcinoma Patients and Their families
Keywords:
Cholangiocarcinoma patient, Coping behaviors, Life experience, Cancer’s familiesAbstract
This qualitative study in hermeneutic phenomenology was aimed to investigate described meanings and coping experiences of Cholangiocacinoma patients and their families. Data collecting by purposive sampling of 9 key-participants who were patients diagnosed with cholangiocarcinoma and their families were conducted. Data were collected by in-depth-interview and analyzed using Colaizzi’s technique focusing on interpretation of individual’s experience.
The result showed that(1) ‘Liver mass’ was the given meaning of cholangiocarcinoma by patients and their families while ‘malignant tumor’ is the meaning of severity. (2) FACT was patients’ coping mechanism. At the beginning, they were fearful or ‘soul losses’, and anxiety but after treatment, they were relieved and accepted their fates. Then, they had adapted and changed their behaviors. Finally, they can teach others. (3) Both modern medicine provided by health professionals, and alternative medicine provided by Thai traditional sectors were their healing choices. (4) Mental support from their families, relatives and community had impact on patients’ healing, especially their minds. Giving the meaning for cancer, learning for adaptation can reflect the treatment and healing plans for health professionals that are relevant to patients and families’ perspectives and perceptions as well as suitable for health cultural context in each community.
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