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Background: The perceptions and self-care experiences of patients with chronic kidney disease play crucial information in caring and delaying the progression of chronic kidney disease for patients.
Objectives: To explore the meaning of chronic kidney disease and what it entails to be a patient with chronic kidney disease, and to explore the perceptions and self-care experiences of patients with chronic kidney disease in the community.
Methods: This study was a phenomenological design. In-depth interviews were conducted with sixteen patients with chronic kidney disease. Purposive sampling was used to select the participants. Data were analyzed using Giorgi’s phenomenological method.
Results: The patients perceived a meaning of chronic kidney disease in that it is caused by accumulation of drug leading to loss of kidney function. It is treated with dialysis and patients eventually die. The patients perceived who had chronic kidney disease based on laboratory results or information from their doctors. Five core themes emerged regarding self-care as a patient with chronic kidney disease emerged, including 1) causes of chronic kidney disease; 2) impairment of life; 3) self-care of patients with chronic kidney disease; 4) expectations of living with chronic kidney disease; and 5) healthcare support.
Conclusions: Patients perceived the meaning of chronic kidney disease, what it entails to be a patient, and experienced self-care regarding chronic kidney disease in both positive and negative aspects. Therefore, accurate perception of chronic kidney disease should be created among patients. Patients should be helped to take proper care of themselves to reduce the progression of diseases.
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