การพัฒนาและการใช้แนวปฏิบัติการดูแลครอบครัวของผู้ป่วยเด็กในระยะการดูแลช่วยเหลือเยียวยาหลังการสูญเสีย

Phawinee  Piwngam; Somporn Poonpanitoopatum; Lunliya  Thampratankul

Authors

Phawinee Piwngam Division of Pediatrics Nursing, Department of Nursing Service, Ramathibodi Hospital, Mahidol University
Somporn Poonpanitoopatum Division of Pediatrics Nursing, Department of Nursing Service, Ramathibodi Hospital, Mahidol University
Lunliya Thampratankul Department of Pediatrics, Faculty of Medicine Ramathibodi Hospital, Mahidol University

Keywords:

bereavement care, pediatric palliative care, family care guidelines for pediatric patients

Abstract

This research and development study aimed to develop and implement a practice guideline for bereavement care for families of pediatric patients who had received palliative care. The sample was selected using purposive sampling, including 43 family members of deceased pediatric patients who had entered the palliative care system at the Pediatric Nursing Department, Faculty of Medicine Ramathibodi Hospital, Mahidol University. The research instruments included the bereavement care practice guideline for families of pediatric patients, the Brief Grief Questionnaire (BGQ), and a satisfaction questionnaire. The reliability of BGQ measured by Cronbach’s alpha was .75. Data were analyzed using descriptive statistics and the Wilcoxon Signed-Rank test.

The findings indicated that: 1) The developed practice guideline for bereavement care of families of pediatric patients receiving palliative care demonstrated a content validity index (CVI) ranging from .87 to 1.00 and was considered both clinically appropriate and feasible, yielding outcomes aligned with its intended objectives; 2) Follow-up assessments of BGQ scores among participating family members showed a significantly decrease over time, with scores at 2 weeks, 6 weeks, and 6 months post-loss demonstrating statistical significance at the .05 level (Mdn_{2nd weeks} = 4.00, Mdn_{6th weeks} = 3.00 and Mdn_{6th months}= 1.00, respectively; p = .000); and 3) Overall satisfaction with the bereavement care received over the 6-month period was reported at the highest level (M = 4.72, SD = .29).

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