Health states of adolescents with cerebral palsy: Caregivers’ perception
Keywords:
caregiver, health status, adolescent with cerebral palsyAbstract
This descriptive research was to study the health status of adolescents with cerebral palsy as perceived by their caregivers. This study was conducted among 100 adolescents with cerebral palsy who attended Srisangwan School, Khon Kaen Province. The research tools were: 1) demographic questionnaire of adolescents with cerebral palsy and their caregivers, 2) health status questionnaire for adolescents with cerebral palsy (content validity index was 1). The data were analyzed by using frequency, percentage, mean, and standard deviation the data.
The results showed that caregivers perceive that adolescents with cerebral palsy to have the problems of health status in all five domains as follow: 1) physical health, 96 percent of adolescents with cerebral palsy had mobility and mobility problems, 60 percent of speech and communication problems; 2) mental health, 66 percent of adolescents with cerebral palsy had easier anger and irritability, 29 percent had emotional problems such as stress, depression, and loneliness; 3) social health, a half of adolescents with cerebral palsy had the good relationship with their mothers, 47 percent had relationship problems with their friends, 4) intelligent health, 67 percent did not calculate with plus or minus, 59 percent did not solves their complex problems; 5) spiritual health, all of adolescents with cerebral palsy were beliefs and practices in Buddha religion, 95 percent of caregivers set the ultimate goal to caring for adolescents with cerebral palsy until they died.
Nurses should encourage caregivers to have the ability and potential cover all five domains of health status for appropriate caring of adolescents with cerebral palsy.
References
Sucharitpong S, Rungpraiwan R, Hansakunachai T, Benjasuwanthep B, Feuangfoo A, Juthaphisit J, et al., editors. Textbook of child development and behavior. 4 th ed. Bangkok: Child Development and Behavior Club of Thailand; 2018. (in Thai)
The center for children with special needs seattle children’s hospital. Cerebral palsy critical elements of care. USA: Seattle. Washington: Center for Children with Special Needs; 2011.
Shusterman M. The cerebral palsy tool kit. CP now. South Carolina: Greenville; 2015.
Graham H, Rosenbaum P, Paneth N, Dan B, Lin JP, Damiano DL, et al. Cerebral palsy. Nat Rev Dis Primers 2016;2:15082. Available from: http://doi.org/10.1038/nrdp. 2015.82
National Statistical Office. Survey report of disabilities’ persons 2017. Bangkok: National Statistical Office; 2017. [Retrieved 12 Apr 2020]. Available from: http://www.nso.go.th. (in Thai)
Ngamthanawat P, Chavasiri S. Epidemiology of pediatric patients at department of rehabilitation medicine, Siriraj hospital. J Thai Rehabil Med 2016;26(1):31-8. (in Thai)
Na-Rungsri K. Primary caregivers’ voice: Experience of food preparing and feeding children with cerebral palsy. TMJ 2014;14(4):589-97. (in Thai)
Yamaguchi R, Perry KN, Hines M. Pain anxiety and emotional and behavioral problems in children with cerebral palsy. Disability and Rehabilitation 2014;36(2):125-30. Available from: http://doi.10.3109/09638288.2013.782356
Teeraworrawach W. Relationship between coping patterns and family well-being of caregivers of child with cerebral palsy. J Ment Health Thai 2019;27(3):145-58. (in Thai)
Wintels SC, Smits D-W, van Wesel F, Verheijden J, Ketelaar M. How do adolescents with cerebral palsy participate? Learning from their personal experiences. Health Expect 2018;111. Available from: http://doi.org/10.1111/hex.12796
Sigurdardottir S, Indredavik MS, Eiriksdottir A, Einarsdottir K, Gudmundsson HS, Vik T. Behavioural and emotional symptoms of preschool children with cerebral palsy: A population‐based study. Dev Med Child Neurol 2010;52(11):1056–61. Available from: http: //doi:10.1111/j.1469-8749.2010.03698.x
Hongrapipat J. A comparative study of quality of life (QOL) and mental health of caregiver with cerebral palsy child with healthy control. MJSBH 2014;29(3):139-48. (in Thai)
Marrón EM, RedolarRipoll D, Boixadós M, Nieto R, Guillamón N, Hernández E, et al. Burden on caregivers of children with cerebral palsy: Predictors and related factors. Univ Psychol 2013;12(3):767-77. Available from: http: doi:10.11144/Javeriana.UPSY12-3.bccc
Dieleman LM, Van Vlaenderen R, Prinzie P, De Pauw SW. Parents’ need-related experiences when raising an adolescent with cerebral palsy. Adv Neurodev Disord 2019;3:204–19. Available from: https://doi.org/10.1007/s41252-019-00111-3
Ferreira MC, Garcia NR, Prudente COM,Ribeiro MFM. Quality of life of adolescents with cerebral palsy: Agreement between selfreport and caregiver’s report. Rev. Latino-Am. Enfermagem2020;28:e3300.[Access Aug 20, 2021]. Available from:https://www.scielo.br/j/rlae/ a/fWHmK5GtwkfQ9ycPy6njDGN/?format=pdf&lang=en. doi:http://dx.doi.org/10.1590/15188345.3928.3300.
Bianchi LP, Keiko ST, Roberta C, Thelma SM. Social participation: The perspectives of adolescents with cerebral palsy and their mothers. Int J Dev Disabil 2019;1-10. Available from: http://doi:10.1080/20473869.2019.1623596
World Health Organization. International classification of functioning, disability and health (ICF). Geneva: World Health Organization; 2001.
World Health Organization. Classification of functioning, disability and health. Children and Youth Version 2007. Geneva: World Health Organization;2007.
Rosenbaum PL, Livingston MH, Palisano RJ, Galuppi BE, Russell DJ. Quality of life and health-related quality of life of adolescents with cerebral palsy. Dev Med Child Neurol 2007;49:516–21.
Tantilipikorn P, Watter P, Prasertsukdee S. Identifying assessment measures and interventions reported for Thai children with cerebral palsy using the ICF-CY framework. Disabil Rehabil 2012;34(14):1178-85. Available from: http://doi:10.3109/09638288.2011. 637603.
Power R, King C, Muhit M, Heanoy E, Galea C, Jones C, et al. Health-related quality of life of children and adolescents with cerebral palsy in low- and middle-income countries: A systematic review. Dev Med Child Neurol 2018;60(5):469-79. Available from: http://doi:10.1111/dmcn.13681.
Tan SS, van Meeteren J, Ketelaar M, Schuengel C, Reinders-Messelink HA, Raat H, et al. Long-term trajectories of healthrelated quality of life in individuals with cerebral palsy: A multicenter longitudinal study. Arch Phys Med Rehabil 2014;95(11):2029-39. Available from: http://doi:10.1016/j.apmr.2014.04.031.
Malila P, Seeda K, Machom S, Salangsing N, Eungpinithpong W. Effects of Thai massage on spasticity in young people with cerebral palsy. J Med Assoc Thai 2015;98 Suppl 5:S92-6.
Srisangwan School, Khon Kaen. Annual report of the educational institution (SAR), academic year; 2018 [Internet]. Khon Kaen: Srisangwan School, Khon Kaen; 2018. [cited 2020 Mar 28th]. Available from: http://www. srisangwankhonkaen.ac.th/swkk/th/node/ 145. (in Thai)
Boonchana S. Preliminary research methodology in health. Documents for training workshops in developing routine work into research for public health personnel, Public Health Office. Khon Kaen; 2017. (in Thai)
Srisathitnarakun B. Development and quality inspection of research instruments: Properties: Psychological measurements. Bangkok: Chulalongkorn University; 2012. (in Thai)
Wannasuntad S, Kanchanaaree S. Intervention for training and empowering caregivers of cerebral palsy children: A scoping review. J Health Nurs Res 2019;35(3):235-49. (in Thai)
Colver A, Thyen U, Arnaud C, Beckung E, Fauconnier J, Marcelli M, et al. Association between participation in life situations of Children with cerebral palsy and their physical, social, and attitudinal environment: A cross-sectional multicenter European study. Arch Phys Med Rehabil 2012;93:2154-64.
Majnemer A, Shikako-Thomas K, Lach L, Shevell M, Law M, Schmitz N. Mastery motivation in adolescents with cerebral palsy. Res Dev Disabil 2013;34(10):3384-92.
Panyatanakun N, Terathongkum S, Sakulhongsopon S. Factors associated with caregiving behavior of family caregivers of children with cerebral palsy in Bangkok. TJNMP 2019;6(1):5-18. (in Thai)
Makris T, Dorstyn D, Crettenden A. Quality of life in children and adolescents with cerebral palsy: A systematic review with meta-analysis. Disabil Rehabil 2019;1-10. Available from: http://doi:10.1080/09638288.2019.1623852
Duangdech W, Patoomwan A, Pookboonmee R, Orathai P, Roberta S. Rehm. A causal model of health status of children with cerebral palsy. Pacific Rim Int J Nurs Res 2017;21(4):291-304.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2022 Journal of Nursing Science and Health
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.
The Journal of Nursing Science and Health is copyright holder of published articles. Distributions of articles published in Journal of Nursing Science and Health including online, photocopying which is not for teaching-learning purpose, publication submission elsewhere are prohibited except obtaining permission from the Journal of Nursing Science and Health.
