The role of nurses in palliative care for pediatric cancer patients and families: A case study of Neuroblastoma in the recurrent period
Keywords:
palliative care in children and adolescences, the role of nurse in terminal care, neuroblastomaAbstract
Neuroblastoma in pediatrics is a tumor caused by abnormalities in neural stem cells. Clinical signs and symptoms vary by the location, and the size of the tumor; the location of the tumor progression; or stage of disease. Pediatric patients with neuroblastoma entering the terminal stage of the disease require palliative care, which nurses play an important role in providing care in the terminal stage. This article presents the knowledge regarding neuroblastoma, palliative care for pediatric patients, and the role of nurses in providing palliative care for pediatric patients with neuroblastoma in the recurrent period, through a case study of pediatric patient who was admitted to a pediatric ward in February 2022 and received palliative care in accordance with problems and needs of pediatric patients and their families.
This article presents the role of nurses in providing palliative care for pediatric patients with neuroblastoma focusing on family-centered care based on religious and cultural family beliefs and links to the local health care units as well as ethical considerations in palliative care. It also suggests the role of nurses in supporting family caregivers in terminally illness.
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