Effect of the Individual and Family Self-Management Program on Health-Related Quality of Life Among Adolescents with Transfusion Dependent Thalassemia
Keywords:
Self-management, Health-related quality of life, Transfusion dependent thalassemia, AdolescentsAbstract
This quasi-experimental design aimed to study the effects of the individual and family self-management program on health-related quality of life among adolescents with transfusion dependent thalassemia. The sample were 32 adolescents aged between 15-19 years old. Purposive sampling was used to choose the sample population, which was divided into experimental and control groups, each consisting of 16 participants. The research instruments for experimental activity included the self-management program for individuals and families, which was developed by the researcher and based on Ryan and Sawin’s approach for eight-week training. The instruments for collecting data were 1) a general information questionnaire; 2) a transfusion-dependent quality of life questionnaire which wase test for reliability using the Cronbach’s alpha coefficient with a value of .89 and a validity of .77. The data were analyzed including frequency, percentages, mean, standard deviation and t-test statistics.
The results showed that the mean score for health-related quality of life among experimental group after using the Individual and Family Self-Management Program was statistically significantly higher than before using the program and statistically significantly higher than control group (p<.05). These findings suggest that nursing teams can implement the Self-Management Program to promote the health-related quality of life to be continuously at home for adolescents with transfusion dependent thalassemia.
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