The Perception of Needs in End Stage Renal Disease Patients and Caregivers for Palliative care: Phenomenological Study

Authors

  • Jintana Artsanthia Faculty of Nursing, Saint Louis College
  • Mayura Noppornpun Faculty of Nursing, Saint Louis College
  • Sayfon Mungsungnen Faculty of Nursing, Saint Louis College
  • Parichat Teeradetchachart Faculty of Nursing, Saint Louis College
  • Saychol Amaridchatchawan Faculty of Nursing, Saint Louis College

Keywords:

Perception of needs, Palliative care, End stage renal disease

Abstract

This phenomenological study had objectives to 1). Study perception of illness with end stage renal disease 2). Study of perception in palliative care of patient and caregivers, and 3). study the needs of palliative care of patient and family. The sample were 25 patients and caregivers. Data collection composed of in-depth interview, focus group and observe without participation. The questionnaire had CVI 0.81 by passing the 3 experts. Data analysis was used by content analysis.

The result found that the perception and the meaning of end stage renal disease composed of suffering disease, need to deeply understand and try to live with this disease. The problems from the disease composed of loss money, lead to be alone, encounter with many problems from disease. The perceptions of the body were stable and worse if good care it will be fine if not will lead to die, need to get hemodialysis, uncomfortable with the symptom. Moreover, the patient perceived pain as normal and natural thing that they coped, some of them wanted to die without treatment. The factors affected to quality of life composed of budget in treatment, loss of the role, relationship of family.

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Published

26-04-2021

How to Cite

1.
Artsanthia จ, Noppornpun ม, Mungsungnen ส, Teeradetchachart ป, Amaridchatchawan ส. The Perception of Needs in End Stage Renal Disease Patients and Caregivers for Palliative care: Phenomenological Study. J Royal Thai Army Nurses [Internet]. 2021 Apr. 26 [cited 2022 May 18];22(1):244-53. Available from: https://he01.tci-thaijo.org/index.php/JRTAN/article/view/249032

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Section

Research Articles