End-of-Life Care of Pediatric Patients from the Super Tertiary Care Hospital to Home: Perspectives and Experiences of Health Care Providers and Family
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Abstract
This qualitative descriptive research aimed to describe perspectives and experiences of the end-of-life care from the super tertiary hospital to home in 7 healthcare providers consisting of pediatricians, pediatric nurses, social workers and 2 mothers who take care children at end-of-life. Data were collected by semi-structured interviews and audio record. Sandelowski’s qualitative content analysis method was employed for data analysis by Lincoln and Guba’s criteria in their approach to trustworthiness.
The results revealed that end-of-life care as perceived and experienced by healthcare providers and families could be divided into 3 themes were 1) delayed access to end-of-life care for children depends on decisions made by the pediatrician team and family 2) caring for end-of-life pediatric patients from the hospital to their homes requires collaboration between the pediatric team and the palliative care team and clear communication skills with families and 3) needs of terminally ill pediatric patients who want to die with their loved ones. The findings can be basic information for studying factors related to end-of-life pediatric care. Especially the collaboration between the primary care team and the palliative care team, promoting effective communication skills and enhance the efficiency of palliative care for terminally ill pediatric patients.
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