ความชุกและปัจจัยที่เกี่ยวข้องกับความรู้สึกเป็นภาระของผู้ดูแลหลักของผู้ป่วยเด็กพิการ ในสาขาเวชศาสตร์ฟื้นฟูเด็ก คณะแพทยศาสตร์ศิริราชพยาบาล
ความชุกและปัจจัยที่เกี่ยวข้องกับความรู้สึกเป็นภาระของผู้ดูแลหลักของผู้ป่วยเด็กพิการ ในสาขาเวชศาสตร์ฟื้นฟูเด็ก คณะแพทยศาสตร์ศิริราชพยาบาล
Keywords:
primary caregiver, children with chronic condition, caregiver burden, quality of lifeAbstract
Objectives: To study prevalence of caregivers’ feeling of burden in disable children and related factors.
Study design: Cross-sectional study
Setting: Division of Pediatric Rehabilitation Siriraj hospital
Subjects: Sixty-one main caregivers of children with disabilities.
Methods: Caregivers completed the questionnaires consisting of general demographic data of children and caregivers, the Zarit Burden Interview (Thai version) and the WHOQOL-BREF-THAI. Children medical data were retrieved from their medical records.
Results: Average age of children was 3.75 years old. The two common diagnoses were cerebral palsy (37.7%) and genetic diseases (24.6%). 93.2% needed caregiver to assisted activities of daily living. 72.1% of the caregivers were mothers with mean age of 36.02 (SD 8.7) years old. Average time spending for caregiving was about 20.5 (SD 5.4) hours per day. Only 45% of the caregivers felt burden in taking care of their children. Mean score of Zarit Burden Interview was 23.13 (SD14.07; min 6 max 72), and mean quality of life score was 92.14 (SD 11.75; min 64 max 115). The Pearson correlation between caregivers’ burden score and quality of life score (r) was -0.452 (p<0.05). Higher burden score found in caregiver who work fulltime in addition to their routine caregiving (p=0.046), who care older children (p=0.042) as well as children with intellectual impairment (p=0.030). Factor related to low caregivers burden score were the high score of quality of life (p=0.003), caregiver cerebral palsy(p=0.030). Caring children with good(p=0.038) and fair(p=0.021) feeding skill as well as children with visual problem(p=0.030) are also associated with low burden score.
Conclusion: 45% of caregivers in this study feel burden regarding to their caregiving work. Factors related to burden were type of work, quality of caregiver’s life, children age, children with cerebral palsy, intellectual impairment, and children with visual problem.
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