Caregiver and Palliative Care

Caregiver and Palliative Care


  • Orapan Fumaneeshoat Family Medicine and Preventive Medicine, Faculty of Medicine, Prince of Songkla University, Hat Yai, Songkhla 90110, Thailand.



burden, caregivers, palliative care, reviews


Palliative care aims to improve the quality of life of both the palliative care patient and their caregiver. Palliative care caregivers care for palliative care patients who suffer from symptoms and unmet needs. Most reviews and research to date have focused on the palliative patient, also called the care recipient. However, we still have little knowledge about the palliative care caregivers, including the risk factors of these caregivers becoming overburdened leading to caregiver burnout. The objective of this review was to examine the responsibilities of palliative care caregivers and the associated risks of these caregivers developing caregiver burden. We review the caring work of the caregivers, the types of caregivers, the differences between palliative care and general caregivers, the different types and levels of problems they face in caring for their patients and the risk factors of developing palliative care caregiver burden. We hope this review will increase awareness of this problem and help to improve the palliative care system to look after the needs of not only the patients in the system but also the patients’ caregivers, who play such an important role.


Download data is not yet available.


Number and rate of patients in 2016 – 2018 Per 100,000 population [homepage on the Internet]. Bangkok: Division of non-communicable diseases; 2018 [cited 2020 Apr 19]. Available from: documents-detail.php?id=13684&tid=32&gid=1-020

Schempp D. Caregiving 101: On Being a Caregiver [mono- graph on the Internet]. San Francisco: Family Caregiver Alliance; 2016 [cited 2020 Apr 19]. Available from:

Definition of palliative care [homepage on the Internet]. Geneva: World Health Organization; 2018 [cited 2020 Apr 19]. Available from: tion/en/

Hudson P, Payne S. Family caregivers and palliative care: current status and agenda for the future. J Palliat Med 2011;14:864-9.

Adelman D, Tmanova L, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. JAMA 2014;311:1052-60.

Collins L, Swartz K. Caregiver Care [monograph on the Internet]. American Family Physician; 2016 [cited 2020 Apr 19]. Available from: p1309.html

Veloso V, Tripodoro V. Caregivers burden in palliative care patients: a problem to tackle. Curr Opin Support Palliat Care 2016;10:330-5.

Mollaoğlu M. caregiving and home care [monograph on the Internet]. London: Intechopen; 2018 [cited 2020 Apr 19]. Available from: -and-home-care

Definitions [homepage on the Internet]. Family Caregiver Alliance; 2014 [cited 2020 Apr 19]. Available from: https://

Alam S, Hannon B, Zimmermann C. Palliative Care for Family Caregivers. J Clin Oncol 2020 Mar 20;38:926-36.

Burn-out an “occupational phenomenon”: International Classification of Diseases [homepage on the Internet]. Geneva: World Health Organization; 2020 [cited 2020 Apr 19]. Available from dence/burn-out/en/

Recognizing Caregiver Burnout [homepage on the Internet]. Geneva: World Health Organization; 2020 [cited 2020 Apr 19]. Available from: giver-recognizing-burnout#1

Gérain P, Zech E. Informal Caregiver Burnout? Develop ment of a Theoretical Framework to Understand the Impact of Caregiving. Front Psychol 2019;10:1748-54.

Global atlas of palliative care at the end of life [homepage on the Internet]. World Health Organization; 2020 [cited 2020 May 19]. Available from: publications/palliative-care-atlas/en/

Potter J, Hami F, Bryan T, Quigley C. Symptoms in 400 patients referred to palliative care services: prevalence and patterns. Palliat Med 2003;17:310-4.

Hui D, Dev R, Bruera E. The last days of life: symptom burden and impact on nutrition and hydration in cancer Caregiver and Palliative Care Fumaneeshoat O. patients. Curr Opin Support Palliat Care 2015;9:346-54.

Areia N, Fonseca G, Major S, Relvas A. Psychological Morbidity in Family Caregivers of People Living With Terminal Cancer: Prevalence and Predictors. Palliat Support Care 2019;17:286-23.

Oechsle K, Ullrich A, Marx G, Benze G, Heine J, Dickel L, et al. Psychological Burden in Family Caregivers of Patients With Advanced Cancer at Initiation of Specialist Inpatient Palliative Care. BMC Palliat Care 2019;18:102-10.

Korte-Verhoef M, Pasman H, Schweitzer B, Francke A, Onwuteaka-Philipsen B, et al. Burden for Family Carers at the End of Life; A Mixed-Method Study of the Perspectives of Family Carers and GPs. BMC Palliat Care 2014; 13:16-20.

Perpiñá-Galvañ J, Orts-Beneito N, Fernández-Alcántara M, García-Sanjuán S, García-Caro M, Cabañero-Martínez M. Level of Burden and Health-Related Quality of Life in Caregivers of Palliative Care Patients. Int J Environ Res Public Health 2019;29;16-20.

Feinberg L. Caregiver Assessment. Am J Nurs 2008;108:38-9.

Morgan T, Williams L, Trussardi G, Gott M. Gender and Family Caregiving at the End-Of-Life in the Context of Old Age: A Systematic Review. Palliat Med 2016;30:616-24.

Janze A, Henriksson A. Preparing for Palliative Caregiving as a Transition in the Awareness of Death: Family Carer Experiences. Int J Palliat Nurs 2014;20:494-501.

Guerriere D, Husain A, Zagorski B, Marshall D, Seow H, Brazil K, et al. Predictors of Caregiver Burden Across the Home-Based Palliative Care Trajectory in Ontario, Canada. Health Soc Care Community 2016;24:428-38

Lee K, Chang W, Chou W, Su P, Hsieh C, Chen J, et al. Longitudinal Changes and Predictors of Caregiving Burden While Providing End-of-Life Care for Terminally Ill Cancer Patients. J Palliat Med 2013;16:632–7.

Shiba K, Kondo N, Kondo K. Informal and Formal Social Support and Caregiver Burden: The AGES Caregiver Survey. J Epidemiol 2016;26:622–8.

Krug K, Miksch A, Peters-Klimm F, Engeser P, Szecsenyi J. Correlation Between Patient Quality of Life in Palliative Care and Burden of Their Family Caregivers: A Prospective Observational Cohort Study. BMC Palliat Care 2016;15:4-10.

Berry L, Dalwadi S, Jacobson J. Supporting the Supporters: What Family Caregivers Need to Care for a Loved One With Cancer. J Oncol Pract. 2017;13:35-41

Alam S, Hannon B, Zimmerman C. Palliative Care for Family Caregivers. J Clin Oncol 2020;38:926-36.

Washington K, Pike K, Demiris G, Oliver D, Albright D, Lewis A. Gender Differences in Caregiving at End of Life: Implications for Hospice Teams. J Palliat Med 2015;18:1048- 53.

Verhoef M, Nijs E, Horeweg N, Fogteloo J, Heringhaus C, Jochems A, et al. Palliative care needs of advanced cancer patients in the emergency department at the end of life: an observational cohort study. Support Care Cancer 2020;28:1097-107.

Soroka J, Froggatt K, Morris S. Family Caregivers’ Confidence Caring for Relatives in Hospice Care at Home: An Exploratory Qualitative Study. Am J Hosp Palliat Care 2018; 35:1540-6.




How to Cite

Fumaneeshoat O. Caregiver and Palliative Care: Caregiver and Palliative Care. PSU Med J [Internet]. 2021 Sep. 2 [cited 2022 May 28];1(3):123-9. Available from:



Review Articles