Mapping the Landscape of Palliative Care in Indonesia: A Scoping Review of Availability, Accessibility, and Quality
DOI:
https://doi.org/10.31584/jhsmr.20251250Keywords:
Indonesia, palliative care, prevention, scoping review, terminal careAbstract
Indonesia has made notable strides in palliative care services over recent decades, yet substantial challenges persist, particularly in rural and under-resourced regions. This scoping review assesses the current landscape of palliative care in Indonesia, focusing on service availability, accessibility, and quality, including the effects of the coronavirus disease 2019 (COVID-19) pandemic. Following the Joanna Briggs Institute’s methodology and the PCC (Population, Concept, Context) framework, relevant studies published between 2016 and 2024 were sourced from databases such as ScienceDirect and PubMed. Findings indicate that although some progress has been achieved, palliative care services remain limited and unevenly distributed, with stark urban–rural disparities and a heavy reliance on out-of-pocket payments or charitable support. Integration into the national healthcare system remains minimal, hindered by inadequate infrastructure, insufficient policy implementation, and a shortage of trained providers. In the absence of formal support, the burden of care largely falls on family members, who face significant financial and emotional strain. These findings underscore an urgent need for strengthened policy frameworks, dedicated funding mechanisms, and culturally appropriate care models to improve access and equity. Future efforts should prioritize embedding palliative care into Indonesia’s core health services while addressing the diverse needs of patients and families across the country.
References
Rochmawati E, Wiechula R, Cameron K. Current status of palliative care services in Indonesia: a literature review. Int Nurs Rev 2016;6:180-90.
Nuraini T, Andrijono A, Irawaty D, Umar J, Gayatri D. Spirituality-focused palliative care to improve Indonesian breast cancer patient comfort. Indian J Palliat Care 2018;24:196-201.
Shatri H, Putranto R, Irawan C, Adli M, Agung RA, Abdullah V, et al. Factors associated with pain in palliative patients and the role of spiritual services in pain management. Acta Med Indones 2019;51:296-302.
Wicaksono RB, Muhaimin A, Willems DL, Pols J. Tie your camel first, then rely on God: reconceptualizing Javanese Islamic values to support palliative care at home. BMC Palliat Care 2024;23:63.
Effendy C, Kristanti MS. The importance of providing palliative care for patients with severe COVID-19 in Indonesia. Belitung Nurs J 2021;7:438-42.
Widjaja SS, Rusdiana R, Jayalie VF, Amelia R. What contributes to palliative care practice in cancer patients in Indonesia. Med Arch 2022;76:464-8.
Andriastuti M, Halim PG, Tunjungsari E, Widodo DP. Homebased palliative intervention to improve quality of life in children with cancer: a randomized controlled trial. Asian Pac J Cancer Prev 2022;23:3029-34.
Effendy C, Agustina HR, Kristanti MS, Engels Y. The nascent palliative care landscape of Indonesia. Eur J Palliat Care 2015; 22:98-101.
Eng V, Sudoyo AW, Nuhonni SA, Hendrianto K. Indonesia’s unique social system as key to successful implementation of community- and home-based palliative care. JCO Glob Oncol 2023;9:e2200290.
Wilson F, Wardani E, Ryan T, Gardiner C, Talpur A. Barriers and mechanisms to the development of palliative care in Aceh, Indonesia. Prog Palliat Care 2024;32:22-8.
Martina D, Witjaksono MA, Putranto R. Advance care planning in indonesia: current state and future prospects. Z Evid Fortbild Qual Gesundhwes 2023;180:94-8.
Soebadi RD, Tejawinata S. Indonesia: status of cancer pain and palliative care. J Pain Symptom Manage 1996;12:112-5.
Arisanti N, Sasongko EPS, Pandia V, Hilmanto D. Implementation of palliative care for patients with terminal diseases from the viewpoint of healthcare personnel. BMC Res Notes 2019;12:217.
Peters MDJ, Marnie C, Tricco AC, Pollock D, Munn Z, Alexander L, et al. Updated methodological guidance for the conduct of scoping reviews. JBI Evid Synth 2020;18:2119-26.
Tricco AC, Lillie E, Zarin W, O’Brien KK, Colquhoun H, Levac D, et al. PRISMA Extension for Scoping Reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med 2018;169:467-73.
Indarwati R, Fauziningtyas R, Kuncahyo GD, Tristiana RD, Chan CM, Smith GD. Palliative and end-of-life care’s barriers for older adults. Work Older People 2020;24:72-80.
Lickiss JN. Indonesia: status of cancer pain and palliative care. J Pain Symptom Manage 1993;8:423-4.
Putranto R, Mudjaddid E, Shatri H, Adli M, Martina D. Development and challenges of palliative care in Indonesia: role of psychosomatic medicine. Biopsychosoc Med 2017;11:29.
Downloads
Published
How to Cite
Issue
Section
License

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.











