A development of resilience enhancing program among the caregivers responsible for home-based palliative care patients, Bandanlanhoi District, Sukhothai Province
Keywords:
Home-based palliative care, Resilience, Resilience-enhancing program, CaregiversAbstract
Enhancing the resilience of caregivers responsible for home-based palliative care patients can improve their ability to manage caregiving burdens. This research aimed to develop a resilience-enhancing program for caregivers of patients receiving in-home palliative care. The research was conducted in 3 phases including 1) situation analysis, 2) development of a program, and 3) evaluation of the effectiveness of the program that was developed. In phases 1 and 2, a total of 48 participants were involved, including doctors, nurses, allied health professionals, health volunteers, and caregivers. For the third phase, the participants consisted of 32 caregivers. The study employed three instruments consisted of 1) a semi-structured interview questionnaire, 2) a program designed to enhance the resilience of caregivers who provide care to patients receiving palliative care at home, and 3) a questionnaire comprising questions related to demographic information and resilience. Qualitative data were analyzed by content analysis. Quantitative data were investigated using descriptive statistics and paired t-tests.
The findings revealed that caregivers faced a scarcity of mental health support and lacked adequate access to mental health services. This information was used as input for a resilience-enhancing program for caregivers. This program comprised five core activities: 1) establishing relationships and providing education on resilience, 2) cultivating self-confidence, 3) improving life management skills, 4) nurturing supportive relationships, and 5) discovering the life goal. Then, the program was implemented and evaluated. The evaluation indicated a significant increase in caregivers' resilience scores across all dimensions and overall, after the program's implementation (p-value < 0.001). These results imply that a resilience-enhancing program for caregivers of patients receiving in-home palliative care effectively supported the resilience of caregivers.
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