A Study of the Feelings of Burden and the Needs of Caregivers in Palliative Care

Main Article Content

Sarawoot Soopunpitug

Abstract

Objectives: (1) to study the prevalence of feeling burdened (2) to study the factors related to the incidence of feelings of burden (3). to study the effects of the feelings of burden on the quality of life (4) to study the needs of  caregivers of palliative care patients.


Materials and methods :A cross-sectional study was carried out among caregivers of 82 primary palliative care patients in Hang Dong District, Chiang Mai Province. A questionnaire and  Zarit Burden interview were used. Data were collected between 1-31 March 2021 using Pearson chi square One way anova statistics.


Results:It was found that 45 cases of feeling burdened, representing 53.6%, were most in low level (40.2%). Significant related factors (p < 0.05) were marriage status, depression, stress, and the presence of underlying disease  among caregivers. Gender and ADL were not correlated. Feeling burdened affected the caregiver’s quality of life.


Summary :Depression, stress and the marital status of the primary caregiver were significantly associated with the incidence of feelings of burden which in turn, affected the quality of life of the family.

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Original article (นิพนธ์ต้นฉบับ)

References

Tangvoraphonkchai J. Cultural end of life care for leukemic children in hospital [dissertation]. Khon Kaen: Khon Kaen University; 2007 [cited 2019 Jul 13]. Available from: https://dric.nrct.go.th/Search/ShowFulltext/1/163517 (in Thai)

Hfocus Insights into the Health System. Thailand: Hfocus [Internet]. 2019 [cite 2019 Jul 13]. Available from: https://www.hfocus.org/content/2019/05/17152 (in Thai)

Health Data Center Ministry of Health [internet]. 2019 [cite 2019 Jul 13]. Available from: https://cmi.hdc.moph.go.th/hdc/reports/report.php?source=pformated/format1.php&cat_id=b08560518ca0eb caf2016dab69fb38b5&id=28e3ca2ae78a73a2b3d37a7d16f02d7d (in Thai)

Patthanareunglai A. List disease of palliative care and functional unit. Nonthaboori: Art Qualifite; 2016 [cited 2021 Jun 1]. Available from: https://www.dms.go.th/back end//Content/Content_File/Old_Content/dmsweb/cpg corner/cpgcorner26122559.pdf (in Thai)

Veloso VI, Tripodoro VA. Caregivers burden in palliative care patients: a problem to tackle. Curr Opin Support Palliat Care [Internet]. 2016 Dec [cited 2020 Feb 14]; 10(4):330-5. Available from: https://pubmed.ncbi.nlm.nih.gov/27635764/. doi: 10.10 97/SPC.0000000000000239.

Sunsern R. Evidence, problems, and health care needs for hypertension patients at Baan-bung District, Chon-Buri Province [Internet]. Journal of Nursing and education 2011;4(1):2-16 [cited 2020 Oct 1]. Available from: https://he01.tci-thaijo. org/index.php/JNAE/article/download/1554/1270/ (in Thai)

Chanapit S. Development of a nursing practice program to reduce the burden of caring for the elderly with dementia [Thesis]. Bangkok: Mahidol University; 2009. (in Thai)

Choi S, Seo J. Analysis of caregiver burden in palliative care: an integrated review. Nurs Forum [Internet]. 2019 [cited 2020 Feb 13];54(2):280-90. Available from: https://pubmed.ncbi.nlm.nih.gov/30737798/

Chulalongkorn University. Faculty of Medicine. Caregiver burden Zarit Burden Interview (ZBI) [Internet]. [cite 2019 Jul 13]. Available from: http://www.cumentalhealth.com/index. php?lay=show&ac=article&Id=539909369

Ministry of Public Health. Department of Mental Health. Guidelines for using mental health tools for personnel in community hospitals [Internet]. 2015 [cite 2021 Aug 1]. Available from: http://envocc.ddc.moph.go.th/uploads/%E0%B8%9B%E0%B8%A3%E0%B8%B0%E0%B8%8A%E0%B8%B8%E0%B8%A1/20-21_11_61/C_1.pdf

Bureau of Elderly Health. Standards of health promotion services for the elderly in hospitals [Internet]. 2021 [cite 2021 Aug 1]. Available from: https://apps.hpc.go.th /dl/web/upFile/2020/01-5044-20200131135354/2eec963

cfea80a2d8d12e1a578d115 a9.pdf

Department of Mental Health. WHO Quality of Life Indicators, abbreviated set: Thai version [internet]. 2021 [cite 2021 Aug 1]. Available from: https://www.dmh.go.th/ test/whoqol/

Piedrahita NH, Arroyave MMI, Restrepo NL, Ceballos JJL, Serna MAR, Arango PAS, et al. Prevalence of caregiver burden syndrome in formal caregivers of institutionalised patients with psychiatric illness. Rev Colomb Psiquiatr (Engl Ed) (Internet). 2021 [cited 2021 Jun 1];50(2):101-7. Available from: https://pubmed.ncbi.nlm.nih.gov/33735025. doi: 10.1016/j.rcp.2019.10.006. Epub 2020 Jan 28. PMID: 33735025.

Qadire MA, Aloush S, Alkhalaileh M, Qandeel H, Al-Sabbah A. Burden among parents of children with cancer in Jordan: prevalence and predictors. Cancer Nursing (Internet). 2020 [cited 2021 Jun 1];43(5):396-401. Available from: https://journals.lww.com/cancernursingonline/Abstract/2020/09000/Burden_ Among_Parents_of_Children _With_Cancer_in.7.aspx. doi: 10.1097/NCC.0000000000000724

Sangsirilak S. Burden among caregivers of schizophrenia patient. Medical journal of Srisaket Surin Buriram Hospital (Internet). 2018 [cited 2021 Jun 1];31(3):139-48. Available from: https://he02.tcithaijo.org/index.php/MJSSBH/article/view/118977/91139

Brodaty H, Woodward M, Boundy K, Ames D, Balshaw R. Prevalence and predictors of burden in caregivers of people with dementia. Am J Geriatr Psychiatry (Internet). 2014 [cited 2011 Jun 1];22(8):756-65. Available from: https://www.sciencedirect. com/science/article/pii/S1064748113002431

Jaracz K, Grabowska-Fudala B, Gorna K, Jaracz J, Moczko J, Kozubski W. Burden in caregivers of long-term stroke survivors: prevalence and determinants at 6 months and 5 years after stroke. Patient Educ Couns [Internet]. 2015 [cited 2021 Jun 1];98(8):1011-6. Available from: https://www.sciencedirect.com/science/ article/ pii/S0738399115001883

Yigitalp G, Surucu HA, Gumus F, Evinc E. Predictors of caregiver burden in primary caregivers of chronic. Int J Caring Sci patients [Internet]. 2017 [cited 2021 Jun 1]; 10(3):1168-77. Available from: http://www.internationaljournalofcaringsciences.org/ docs/7_cumus_original_10_3.pdf

Siddiqui S, Khalid J. Determining the caregivers' burden in caregivers of patients with mental illness. Pak J Med Sci [Internet]. 2019 [cited 2021 Jun 1];35(5):1329-33. Available from: https://doi.org/10.12669/pjms.35.5.720

Achilike S, Beauchamp JES, Cron SG, Okpala M, Payen SS, Baldridge L, et al. Caregiver burden and associated factors among informal caregivers of stroke survivors. J Neurosci Nurse [Internet]. 2020 [cited 2021 Jun 1];52(6): 277-83. Available from: https://pubmed.ncbi.nlm.nih.gov/33156591

Hommmel ALAJ, Lorenzl S, Ferreira JJ, Meissner WG, Odin P, Bloem BR, et al. Caregiver burden in late-stage parkinsonism and its associations. J Geriatr Psychiatry Neurol [Internet]. 2020 [cited 2021 Jun 1]. Available from: https://pubmed.ncbi.nlm. nih.gov/33094677/. doi: 10.1177/0891988720968263

Zubaidi ZSA, Ariffin F, Oun CTC, Katiman D. Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional. BMC Palliat Care study [Internet]. 2020 [cited 2021 Jun 1];19(1):186. Available from: https://pubmed.ncbi.nlm.nih.gov/33292214

Tay M, Kong KH. Caregiver burden in familial caregivers and foreign domestic workers of patients with traumatic brain injury in a multi-ethnic Asian population. Brain Inj [Internet]. 2020 [cited 2021 Jun 1];34(11):1513-7. Available from: https:// pubmed.ncbi.nlm.nih.gov/32835512/

Lee Y, Chiou YJ, Hung CF, Chang YY, Chen YF, Lin TK, et al. Prevalence and associated factors of depressive disorder in caregivers of individuals with parkinson disease. J Geriatr Psychiatry Neurol [Internet]. 2020 [cited 2021 Jun 1]. Available from: https://pubmed.ncbi.nlm.nih.gov/32588710/

Pedroso TG, Araújo ADS, Santos MTS, Galera SAF, Cardoso L. Caregiver burden and stress in psychiatric hospital admission. Rev Bras Enferm [Internet]. 2019 [cited 2021 Jun 1];72(6):1699-706. Available from: https://pubmed.ncbi.nlm.nih.gov/ 31644763. doi: 10.1590/0034-7167-2018-0832. PMID: 31644763.

Yigitalp G, Surucu HA, Gumus F, Evinc E. Predictors of caregiver burden in primary caregivers of chronic patients. Int J Caring Sci [Internet]. 2019 [cited 2021 Jun 1]; 10(3):1168-77. Available from: http://www.internationaljournalofcaringsciences.org/ docs/7_cumus_original_10_3.pdf

Oechsle K, Ullrich A, Marx G, Benze G, Heine J, Dickel L, et al. Psychological burden in family caregivers of patients with advanced cancer at initiation of specialist inpatient palliative care. BMC Palliat Care [Internet]. 2019 [cited 2021 Jun 1];18(102):[about 40 p.]. Available from: https://doi.org/10.1186/s12904-019-0469-7

Ge L, Mordiffi SZ. Factors associated with higher caregiver burden among family caregivers of elderly cancer patients: a systematic review. Cancer Nurs [Internet]. 2017 [cited 2021 Jun 1];40(6):471-8. Available from: https://pubmed.ncbi.nlm.nih. gov/29045247/. doi: 10.1097/NCC.0000000000000445. PMID: 29045247.

Hsu T, Loscalzo M, Ramani R, Forman S, Popplewell L, Clark K, Factors associated with high burden in caregivers of older adults with cancer. Cancer [Internet]. 2014 [cited 2021 Jun 1];120(18):2927-35. Available from: https://pubmed.ncbi.nlm.nih.go v/24898093/. doi: 10.1002/cncr.28765. Epub 2014 Jun 4. PMID: 24898093; PMCID: PMC4159406.

Wen FH, Chen JS, Chou WC, Chang WC, Shen WC, Hsieh CH, et al. Family caregivers' subjective caregiving burden, quality of life, and depressive symptoms are associated with terminally ill cancer patients' distinct patterns of conjoint symptom distress and functional impairment in their last six months of life. J Pain Symptom Manage [internet]. 2019 [cited 2021 Jun 1];57(1):64-72. Available from: https://pubmed.ncbi.nlm.nih.gov/30267845/ doi: 10.1016/j.jpainsymman.2018.09.009. Epub 2018 Sep 27. PMID: 30267845.

Hughes SL, Giobbie-Hurder A, Weaver FM, Kubal JD, Henderson W. Relationship between caregiver burden and health-related quality of life. Gerontologist [Internet]. 1999 [cited 2021 Jun 1];39(5):534-45. Available from: https://doi.org/10.1093/geron t/39.5.534