Guideline of self-management in school age with Thalassemia and Iron overload

Abstract

Objective: This Action research aims to develop guidelines of self-management in school age with Thalassemia and Iron overload. The outcome of healthcare for self-management and

patient satisfaction.

Material and methods: The study was conducted from July 2022 to September 2022 .The sample was composed of 32 children with thalassemia from Pediatric Thalassemia Clinic. Purposive sampling in school age 8-15 years who are serum ferritin > 1000ng/ml.The framework by using the self-management concept by Creer and Action research designs(PAOR). The study instrument includes Guidelines of self-management in school age with Thalassemia and Iron overload; examined for content validity by 5 experts. Quantitative data were analyzed using frequency, percentage ,mean, standard deviation and paired t-test.

Result: The results of this study showed self-management in school age with Thalassemia and Iron overload. Before implemented guideline of self-management mean score 2.32(S.D=0.09) After implemented guideline of self-management mean score 2.73 (S.D=0.26).   The education were significantly higher than the score before education(P< 0.01).After the results for outcome of the Guideline of self-management. They were healthy as a result of Hb , serum ferritin ,weight for age, and height for age. Satisfaction^, s caregiver was in the highest level(X=3.51, S.D=0.15)

Conclusion: Guideline of self-management in school age with Thalassemia and Iron overload. After implemented high levels of self-management and good effect on the health condition. Evaluated by increase hemoglobin ,decreases serum ferritin and weight for age, and height for age and satisfaction^, s caregiver.